What is Encephalocele?
Encephalocele (en-sef-a-lo-seal) is a congenital neural tube defect condition characterized by a large sac of tissue and fluid bulging out of a baby’s head. When the spinal cord doesn’t properly close during formation, brain tissue and cerebrospinal fluid can herniate through the opening, forming a sac outside the head and exposing crucial parts of the central nervous system. On rare occasions, non-congenital encephalocele may result from trauma, tumors, or injuries sustained during previous surgeries or treatments.
What issues do children with Encephalocele face?
DEVELOPMENTAL DELAYS
Neurological impacts include mental disabilities, delayed growth, lack of coordination, and loss of motor function.
STIGMA
Children and their families are often ridiculed or excluded from community life and activities, leading to isolation.
LIFE-THREATENING
Encephalocele can be life-threatening if not treated.
How does surgery change a child’s life?
- The visible tumor or exposed tissue is resolved and neurological conditions caused by brain swelling and excess fluid can be reduced.
- Parents and children experience hope as they are accepted into community life.
- Depending on the location of the encephalocele, prognosis after treatment is favorable.
